So as all of you know it has been a very long time since I have updated the Blog. I am sorry about that and I have heard from a lot of people that would like me to do an update so here we go.
We have been going along with Chemo every other week and trying to make life as normal as it can be. We continue to be amazed at the great people that are out there who continue to inquire about my health and welfare. The chemo is a very frustrating process especially for someone who suffers from OCD like I do. I guess my OCD does not cause me the suffering it does for my family. The aggravating thing is that every chemo treatment seems to bring side effects that are different and come at different times. This variation is a royal pain for a person who wants things to be the same all the time.
So I had the privilege of having another CT scan on Friday March 25th. As you may remember this comes with the opportunity to have another (Berry Smoothie) as we have written in the past this name should be outlawed due to the fact that there is nothing smooth about this. Well this was for the most part good news. As far as the tumors (wow that is a bad word) those in the Liver and Lymph Nodes have shrunk. The Tumors in the Colon and the Spine have stayed the same. So at least nothing has increased in size. So from this news Dr Weis my doctor has decided that I need to continue doing what we are doing as far as the Chemo is concerned. So Lisa and I talked about it and we have decided to listen to the doctor for now and to continue with the chemo. So we have scheduled another 12 rounds. At the end of those 12 rounds we will be almost a year into this (at this point you should really be feeling sorry for the chemo nurses).
So I am sitting here having my 12th treatment and wondering how we got here (it was in Lisa’s car). Life certainly has changed. Today Maegan is spending her day off school with me at the infusion center (I bet the rest of you wish you could have this kind of fun). It is great to have her here with me but unfortunately for her I am wide awake and so she has to sit and listen to me. She is working on an art project (when I am not talking her ear off). The art project is a bird sitting on Barbed wire. I have named the bird LeRoy. The bird looks healthy even though it was created during chemo. Maegan seems to have skills that she has been able to develop even with me as her father.
On a personal note I had one of the greatest experiences of my life on Saturday March 19th. On that night Troop 1293 held an Eagle Court of Honor for 15 boys that had achieved the rank of Eagle (see Photo). What an amazing experience to be involved in the lives of these boys. These boys and all the others that
have come through Troop 1293 have changed my life and in ways I could have never imagined have helped to make my life wonderful. What an amazing privilege it has been to associate with these boys.
Well I will stop for now with a promise to do better at updating the Blog. Thank you again for all the love and support. We continue to be amazed at the great people that are in our lives.
Hi y’all! It’s Maegan signing on to wish you all well. LeRoy, the bird, says hello! Having the day off of school I have been fortunate enough to spend the day with my father and the wonderful nurses. I am constantly amazed at my dad’s humorous attitude. Right now we are comparing the infusion room to a bar. We have the bar maids Keen and Syd who are both exceptional. I think it is more like a plane. We are flying first class baby! The snack cart is making its rounds but has gotten stuck a few stations down. I’m telling you this place has been marvelous and everyone here is so kind and sociable. I am trying to convince my father to draw a large smiley face on his “large and protruding belly” next time he comes. He claims that his stomach escapes his shirt at an astounding rate. I am excited to be here and am really enjoying spending the time with my dad.
