Friday, November 18, 2011
David Rodger Kasteler: Dec. 28, 1966-Nov. 18, 2011
Saturday, July 23, 2011
Summer Update
Things were going great. Dave was going in for chemo every other Monday. Then, summer came. Of course he had a million things to do so he decided to take 5 weeks off of chemo so he didn't have to deal with those side affects. The first thing was vacation with the family. A cruise to Alaska in the middle of June. It was incredible. We had perfect weather and we ate crazy amounts of food. We saw glaciers, went on a hike, went whale watching, saw a lumberjack show, rode a train up to Canada, walked across a huge suspension bridge, went shopping, and went to the Buchart Gardens. It was amazing to get away and have some family time. Dave felt alright most of the time. The back pain was bad a couple days, but he went on all the excursions.
The next week was fairly uneventful. He had some pain but was well enough to work. Then, on Saturday, July 2, Dave went up to Wood Badge camp. Tuesday night was a bad night. He woke up in incredible amounts of pain and waited until morning to get someone to help him. He was in more pain than the day they originally found the cancer. They took him home and then my mom took him up to the emergency room at the University Hospital. After many tests including CT scans and x-rays the found that the tumors in his spine had grown considerably. They also needed a way to dull the pain he was in. They admitted him to the Huntsman Cancer Institute hospital and he was there until Thursday afternoon. They found that his L2 vertebrae collapsed and tumors cover his spine. They decided that he would go in for Radiation Therapy Monday, July 11 through Friday, July 15. Also, they would perform a vertebralplasty surgery on his L2 vertebrae. They did this surgery Friday, July 15 along with a Radiation dose. Pretty much what they do in the surgery is insert a balloon in his spine and fill it with medical cement to fill the space where the vertebrae should be. This should release pressure and hopefully lessen his pain.
The week of radiation was a bad week. He was in a lot of pain so he stayed home the whole week and mostly slept and rested. The surgery has helped his pain quite a bit. He still gets exhausted very easily and sometimes the pain is very intense.
They can't do chemotherapy until one week after radiation so you know what that means.....Chemo on Monday! They are changing the "cocktail" of drugs for his chemotherapy regimen to hopefully shrink the tumors in his spine.
I am very sorry that it has been so long since this thing has been updated. I had to take matters into my own hand and update it myself.
Thank you for all your support, thoughts, and prayers. They are much appreciated and definitely felt. We are so grateful for all that everyone does for us. We are so lucky to have so many incredible people in our lives.
Monday, March 28, 2011
A Day at the Bar
So as all of you know it has been a very long time since I have updated the Blog. I am sorry about that and I have heard from a lot of people that would like me to do an update so here we go.
We have been going along with Chemo every other week and trying to make life as normal as it can be. We continue to be amazed at the great people that are out there who continue to inquire about my health and welfare. The chemo is a very frustrating process especially for someone who suffers from OCD like I do. I guess my OCD does not cause me the suffering it does for my family. The aggravating thing is that every chemo treatment seems to bring side effects that are different and come at different times. This variation is a royal pain for a person who wants things to be the same all the time.
So I had the privilege of having another CT scan on Friday March 25th. As you may remember this comes with the opportunity to have another (Berry Smoothie) as we have written in the past this name should be outlawed due to the fact that there is nothing smooth about this. Well this was for the most part good news. As far as the tumors (wow that is a bad word) those in the Liver and Lymph Nodes have shrunk. The Tumors in the Colon and the Spine have stayed the same. So at least nothing has increased in size. So from this news Dr Weis my doctor has decided that I need to continue doing what we are doing as far as the Chemo is concerned. So Lisa and I talked about it and we have decided to listen to the doctor for now and to continue with the chemo. So we have scheduled another 12 rounds. At the end of those 12 rounds we will be almost a year into this (at this point you should really be feeling sorry for the chemo nurses).
So I am sitting here having my 12th treatment and wondering how we got here (it was in Lisa’s car). Life certainly has changed. Today Maegan is spending her day off school with me at the infusion center (I bet the rest of you wish you could have this kind of fun). It is great to have her here with me but unfortunately for her I am wide awake and so she has to sit and listen to me. She is working on an art project (when I am not talking her ear off). The art project is a bird sitting on Barbed wire. I have named the bird LeRoy. The bird looks healthy even though it was created during chemo. Maegan seems to have skills that she has been able to develop even with me as her father.
On a personal note I had one of the greatest experiences of my life on Saturday March 19th. On that night Troop 1293 held an Eagle Court of Honor for 15 boys that had achieved the rank of Eagle (see Photo). What an amazing experience to be involved in the lives of these boys. These boys and all the others that have come through Troop 1293 have changed my life and in ways I could have never imagined have helped to make my life wonderful. What an amazing privilege it has been to associate with these boys.
Well I will stop for now with a promise to do better at updating the Blog. Thank you again for all the love and support. We continue to be amazed at the great people that are in our lives.
Hi y’all! It’s Maegan signing on to wish you all well. LeRoy, the bird, says hello! Having the day off of school I have been fortunate enough to spend the day with my father and the wonderful nurses. I am constantly amazed at my dad’s humorous attitude. Right now we are comparing the infusion room to a bar. We have the bar maids Keen and Syd who are both exceptional. I think it is more like a plane. We are flying first class baby! The snack cart is making its rounds but has gotten stuck a few stations down. I’m telling you this place has been marvelous and everyone here is so kind and sociable. I am trying to convince my father to draw a large smiley face on his “large and protruding belly” next time he comes. He claims that his stomach escapes his shirt at an astounding rate. I am excited to be here and am really enjoying spending the time with my dad.
Friday, December 31, 2010
We Wish You a Merry Christmas and a Happy New Year
On Saturday the 18th we started our morning at the ward Christmas breakfast and we had a great time there. The food was good and the entertainment was great as usual (I guess it helps to have people like Dan Collett in the ward). Following the breakfast we got our stuff and headed downtown for our annual shopping trip and night at the hotel. We started with a trip to Western Nut Company which always ends up being an expensive adventure. Then we went to Gateway for some shopping and fact finding (gift ideas for Mom). Shopping was fun but it wore all of us out and by about 4:30 we had done what needed to be done and we headed for the Marriott hotel to get checked in and rest. As we were arriving at the hotel Lauren informed us that she had left her nice shoes at home so she and her mother headed back to Gateway to buy a new pair (quicker than running home). So the rest of us rested while they went to get shoes. Then it was time for dinner. We had a 7:30 reservation for The Roof restaurant and as usual it didn’t disappoint us. The food at The Roof is always so good and of course the deserts were amazing. So we ate and then we (I) rolled ourselves out of the restaurant and went and walked through Temple Square and took some photos. By this time this old man was pooped and we headed back to the hotel room and retired for the night.
Sunday morning we got up and got dressed and headed to the Conference Center for the Mormon Tabernacle choir Christmas Concert. We got drenched as we walked to the Conference Center in a driving rain. The concert was amazing and we had a great time. It really did a lot to put all of me in a holiday mood. Following the concert it was time to head home and back to reality.
Monday December 20th was a beautiful day but we went to the Infusion Center at Huntsman anyway. Yes nothing like a little chemo therapy to put a person in the Christmas mood. By the way, before I forget, we need to revise our list of products needed for the do it at home chemo kit. If you are doing it please substitute a 16 oz bottle of Liquid Plummer in place of the 409. We have found that this is a better product for what we are trying to do. And as a note to those who may not be all there, the do it at home chemo kit is a joke and not meant to really be used. So back to chemo this week: This session allowed me to introduce Lauren to the chemo process since we decided to give mom a well deserved break from sitting with me, so Lauren went with me. This session proved to be a royal pain in the _ _ _. We sat there for 4 hours before the lab work was all back and we could start the poison. Thanks to some investigative work by Keen the Great it was discovered that the lab tech input the work needed wrong and then due to a machine breaking down and the last test needing to be done manually the results were delayed. So we finally got started and it was time for Lauren (dads Christmas elf) to go and finish up dads Christmas shopping as I sat there being poisoned (more fun than a tic on the butt of a dog). So following the session we went home and I (the wimp) went to bed. This session was rough. All I did until Christmas was go to work and come home and sleep. I do vaguely remember the kids having a Christmas party for their friends on Wednesday night (you would not have believed the amount of shoes at the front door).
So finally Christmas day arrived and the day started out different than any other Christmas has. Spencer came into our room at about 6:45 and proceeded to work on getting Lisa and I out of bed (we were very uncooperative). So at about 7:10 there was a banging on the front door and the sound of bells and a “Ho Ho Ho”. So I got out of bed and Spencer opened the door. Santa was there with three of his elves and we were given hot pastries, oranges and the twelfth day of Christmas gift. Concerning the twelve days of Christmas gift, there has been someone or we think several someone’s that have done the twelve days of Christmas for us. It has been a wonderful experience and we are very thankful for all they have done for us. The gifts are the parts to a beautiful nativity scene and it is a wonderful addition to the season. So once Santa left we opened our presents and had a great time as a family. Then it was time for the Kasteler side of the family to come over and open gifts. Following this it was time to head to Springville for the Scharffs side of the family Christmas party. It was great to see all of them and to enjoy everyone’s spirit. Following this the day was gone and it was time to head home.
All in all it has been a great Christmas but more than anything it has been great to be together as a family and also to feel the love of those around us.
So that brings us to my birthday on the 28th. As always my family took very good care of me and I felt very special. It is always hard to get older but I guess it is a fact of life and I need to get used to it.
The day after my birthday was the greatest gift of the season. On the 29th I went in for a CT scan and then we met with the doctor. It was mostly good news and we really needed that. The CT scan showed that the lesions in my Liver and Lymph Nodes had reduced in size. The Colon lesions appeared to be a little smaller or about the same and the spine was about the same. So this means that the chemo is working. So following the treatment next Monday, they will modify my treatments for the time being and take away one of the drugs. The one they will take away is the one with the worst side effects: sensitivity to cold, numbness, and some of the nausea just to name a few). That will really help. Then we will have another CT scan in 3 months to see again how we are doing. So it was a little late but what a great gift.
Thank you to all of you that have been so supportive and helpful. Your thoughts and prayers mean a lot to us.
Dave
Monday, December 20, 2010
The Do It At Home Chemo Kit
So I am just starting my fifth Chemo Treatment and it has been an interesting experience so far. As I have been watching and as I ask questions I have found out a lot about what is being put into my body every week. So the questions first started when I saw the gown and extra thick gloves that are used by the nurses when administering the Chemo drugs. so as I asked about it and I was told that the gown and gloves (see attached photos of Keen, my nurse) were because the drugs (and i use that term loosely) were considered corrosives! Wow, the images and fright that conjures up. then I went home a couple of weeks ago and I saw a bill for one Chemo treatment and I was even more horrified. Let me get this straight, I sit and allow Corrosive Drugs to be put into my body and my insurance company and I get to pay thousands of dollars for the experience.
So about this time my mind started racing and I decided that with some simple products found around home I could do it my self and save a ton of money. So the following is my first shot at a do it at home Chemo Kit which by the way will come with a months supply of hair in a can from Ronco.
One 12 Oz. bottle of 409 cleaner (aintbacterial is best)
Two cells worth of battery acid (best if from a very large truck)
.5 Gallons of Diesel fuel (this can be siphoned from the same large truck with the Chemo tubing)
You will use the products in the same order as listed above but a flush with tap water will be required between products. The kit will include all needed supplies except for the Battery acid and diesel fuel (this is due to the desire that they come from a large truck and the cost of said truck). This process can take place in your own home and in the comfort of your own bed. This will also add to the cost savings due to the lack of need for medical facilities (at least for now).
**This treatment is strictly experimental and comes with no guarantees so please use it at your own risk.
**Please consult with your loved ones due to the fact that this is an experimental procedure and their help will be needed in the process of administering the process.
Thursday, December 2, 2010
More Raffles!
1) Hunt Electric has donated 2 lower bowl seats for the Jan 3rd game. Parking pass included. Purchase raffle tickets for $5 and receive one Cancer wristband
2) Family Game Basket. Tickets are $2 and come with a Cancer wristband. Games in the basket include:
Wednesday, November 17, 2010
The Worst of Times, and at the same time the Best of Times
Spencer and I had the opportunity to go to the 2nd game of the World Series |
Chemo Treatments |
Friday, October 29, 2010
Jazz Tickets Raffle
Sunday, October 24, 2010
Pictures!
gotta love that farmers tan and the second belly button!
Thursday, October 21, 2010
Update
Friday, October 15, 2010
Halloween Raffle
Thursday, October 14, 2010
The Fight Begins
Wednesday August 18th - I strained my back and went to see the doctor the next day and I was told it was muscular and would go away. In fact, a few days later it did go away, for the most part so we were not concerned.
Monday October 4th – I woke up and my back was a little more sore than normal, but I went about getting ready for work and driving in to work. By the time I got out of my truck at work I could hardly walk because the pain was so bad. At this point I looked at my options as far as care and finally headed home. Once there Lisa took me to the emergency room where about two hours later I received my first MRI. Following the MRI and the ER doctor reviewing it with the Radiologist we were informed that I had a Tumor in my spine. At this point we were referred to Dr Meic Schmidt at the U of U for evaluation.
Wednesday October 6th – We met with Dr Schmidt and we were informed that a Tumor rarely starts on the spine. It typically starts somewhere else, so off we went for more tests. This began the barrage blood work, the irony is I’m not even a Twilight fan. An appointment was made for a CT scan on the 7th and another appointment with Dr Schmidt on the 11th.
Thursday October 7th – After drinking something called a “Berry Smoothie” (this name should be outlawed) for about 2 hours I was ready for my first CT Scan. This went relatively easy and soon we were on our way out of the hospital. At about 2:00 pm I headed back to the hospital to pick something up from the lab, in route we received a call from Dr Schmidt’s office asking to see me on Friday the 8th rather than Monday the 11th. The reason for moving the appointment up was that they were getting a lot of the tests back and they wanted to get things moving.
Friday October 8th – At 8:30 am we went up and met with Dr Schmidt and we were informed that the CT scan found areas they were concerned about in my Colon, Liver, and Lymph Nodes, so the slim chance this was just the back went out the door. Dr Schmidt made an appointment for 9:30 am for us to see Dr Weis up at Huntsman Cancer institute (yes it is still hard for me to say Cancer in relation to myself but that is what I said). We met first with Dr Manning who is a “Fellow” working with Dr Weis and he did another complete review of me and started to look at what would be needed to move forward. Following this review we met with Dr Manning and Dr Weis and the following appointments were set up. October 11 Colon Biopsy, October 12th Radiation Consult (remember the back pain that started this)for back pain, October 13th follow-up appointment with Dr Weis, and last but not least October 14th Liver Biopsy (isn’t that special). At this point it looked like I might get Friday off for something unrelated to scouting.
Monday October 11th – Now if there is anyone on earth that looks forward to a Colonoscopy I will allow them to do the next one for me (truth is the prep is the tough stuff WOW). So after no solid food for two days and drinking what I will just refer to as “medicinal turpentine” we arrived at Huntsman Cancer Institute at 3:30 for the 4:00 showing. This seemed to go off without a hitch right up to the point the doctor came in and informed us that there were two large tumors in my colon and about 20 polyps. They informed us that the Biopsy’s had been sent off but they were very sure that the tumor’s were malignant. Now with pictures included we got our first look at colon cancer (and yes I used the term cancer again). One bright spot was that due to this knowledge we could probably (with Dr Weis approval) cancel the Liver Biopsy for Thursday, due to the fact that they were relatively sure the cancer started in the colon.
Tuesday October 12th – We made our first visit to Dr Poppy at the Radiation Oncology Department (ah the back pain). This was a very informative visit and we looked at our options for Radiation treatments to help my back pain. We were informed that as soon as our insurance approves it they would like to do one dose of radiation on my back to see if they can help with the pain (remember on October 4th the back pain was all we had). Dr Poppy set up a follow-up appointment for Thursday the 14th to “fit me” for the procedure (I hear they give me a Tattoo on my back to mark the spot, the first thought that came to mind was: “it’s on my lower back I hope I get to pick what tramp stamp I have to live with back there”). Then the procedure would follow a couple of days after that.
Wednesday October 13th – Well yesterday morning we arrived at the Cancer Institute at 9:45 to meet with Dr Weis and another “Fellow” of whom I am forgetting his name. At this appointment we confirmed the diagnosis from the Colonoscopy and we started to look at treatment options. These are not completely defined at this time but the main thing is Chemotherapy from here on out. The biopsy’s are not back, but there is little question of what we are up against.
So how is that for a week and a half? I never in a million years would have dreamed that I would be delivering this news, but I am and we will deal with it the best we can. I would ask that all of you please keep us in your prayers and that you will continue to rely on me for the things I have always done until I am unable to do them. All the doctors we have spoken to without question agree that the busier I stay the better the treatments will go (so your not going to get rid of me that easy). We continue to be amazed at the great people that are in our lives and we are humbled by this trial that has been placed in our path. I am working with a couple of people along with my wife and daughters to develop a Blog and to also update my Facebook page so that people can go there to get updates, so that these can become a place that I can document all the wonderful comments and experiences that we have through this process. Many people have been so thoughtful to bring in meals and to offer to do such and for now until we start into the treatments I would prefer that you keep us in your prayers and when meals and such are needed Lisa and I will let you know. Thank you again for all the thoughts prayers in our behalf.